Guest speakers Sandy Huffman (left) and Rebekah Haskins-Hunt, pictured here with LNR club president Dirk Dahlke, shared about the non-profit's expanded services to help children battling rare diseases. Rebekah Haskins-Hunt understands what it means to struggle with a rare disease. Diagnosed at a young age with a malformation in her brain, Hunt has endured dozens of surgeries and takes daily medication to mitigate seizures and hallucinations, so she can function normally. Although daily life often can be challenging, Hunt says, her personal experience also has uniquely qualified her to lead the charge with Roll for Rare, a new program under the umbrella of the North Texas non-profit organization, Love For Kids, Inc. Love for Kids provides support and resources for youth and the young at heart by strengthening relationships through education, empowerment, and community engagement, explained Sandy Huffman, president of the non-profit, in her presentation at last week's Lewisville Noon Rotary meeting. The services includes providing food, housing, and knowledge resources for children and seniors, and the charity hosts numerous special events throughout the year. Huffman joined Love for Kids in 1976 and has served in every capacity with the organization over the past four decades. She also has developed several programs for the non-profit, the latest of which is Roll for Rare. The new initiative is designed to raise awareness about rare diseases and help raise money for the non-profit's biggest annual event, All Kids Count. Rare diseases affect 1 in 10 Americans, explained Huffman's colleague, Rebekah Hunt, and 50 percent of those with a rare disease are children. The majority of rare diseases (82 percent) are genetic, and 90 percent of rare diseases have no FDA approved treatment protocol. Sadly, one in three children diagnosed with a rare disease will not live to age five, Hunt noted. The non-profit's new program, Roll for Rare, helps raise awareness and funding for events and support services through “rolling” challenges. Supporters can create their own challenge--whether it’s rolling a wheelbarrow for a mile-long run, or rolling a soccer ball across a sports field with their nose--then challenge their friends to donate to their fundraiser and share a video of their challenge on social media. For more information on Love for Kids or to get involved, visit loveforkidsinc.org. |